What to expect when reading bi-polar wife

Thoughts and feelings of living with bi-polar as a wife, mother, and person in the world.

Tuesday, 23 March 2010

Finally - a diagnosis of bi-polar

On reflection, my mood has never been truly stable, and in periods of hyper mania, I've either got on peoples nerves, exhausted them with my energy,  or left them feeling baffled and confused. I can clearly remember being told to slow down, and actually not being able to. So where were we? Oh yes, going to the psychiatrist.

So, I book a taxi to take me to my psychiatric appointment as I'm not allowed to drive after my operation, and request that he wait for me to take me home after. On arrival I sit in the waiting area, and scanning around the room, realise I've been booked in on what looks like geriatric mental health afternoon. I must be the youngest by about 40 years, and wonder if this is where I will be in the future. Everyone one looks disorientated and vague - maybe this is actually a good frame of mind to be in?

I'm finding it hard to sit still and am literally jumping in my seat and cannot concentrate. All I attempt to focus on is the request I have in my mind which is, "Can you help me?" I feel erratic, agitated and so deeply depressed, I feel as though a force in pushing me down into my seat and I can hardly see. I just want it to end. I feel breathless and frightened. I finally get called in, and get a whiff of TCP and old cigarette smell as I pass the old duffers into the waiting room. I sit on my designated chair, hunched over and fractious. I must look like a rabbit caught in headlights. My lovely psychiatrist has a slow, smooth voice and he asks me what is going on and requests that I communicate to him my thoughts and feelings. This is actually quite difficult and I've got so much going on in my head I can't seem to hold on to a train of thought for very long. He keeps asking me if anything has happened, other than the accumulation of stress incidents. I keep telling him no, and continue to try and describe the pictures in my head. I have an internal visual world that is like an I-MAX cinema screen and I attempt to translate these pictures into words of explanation. I am speaking so fast I can hardly keep up with myself, and at the same time, break down in sobs as I feel so depressed I am actually ready to give up.

Sitting there, I feel that I had lost touch with my insight and turned into a raving, rambling thing, with no consistency, boundaries or understanding. I am out of control. What brought me back into the moment was my psychiatrist picking up the phone. I immediately panic, thinking he is ringing the mental health ward, and my legs literally begin running on the spot, ready to run for it. But then he speaks to reception, and asks if my old CPN is around, and could she come down. For a second I feel some relief, but then think she is being summoned to give me a lift to the psychiatric unit. The tension and fear is unbearable. I'm still rambling when she comes in the room, and immediately she says how awful I look. It must be odd for them as most of the time I'm functioning at a reasonable level. To see me on my knees, babbling and gesticulating wildly in some ways is a reassurance. They kept me in services for the 3-5 year window for exactly this reason. They needed to see me this way, instead of me just telling them how I can be.

What happened next was both a relief and a moment of despair. My psychiatrist says I am having a manic episode, mixed with a severe depression which is known as a mixed phase episode. He politely explains that I have Bi-polar disorder, and that I am going to have to take a mood stabalising medication today and for the foreseeable future. The cpn and the psychiatrist both start talking to each other about different types of medication, trying to agree what would be best to level me out. At this point I feel left out. They both turn to me smiling like weird parents, and tell me I have to take a medication called quetiapine. It will bring down my mania and will work well with my anti-depressant. Apparently, although mentally I will be better off, I may gain weight, twitch, have a dry mouth and constipation, feel sluggish and generally a bit naff. For a while. My response is, "Great! I'm going to be mental and fat." Well its either that, or get even worse and go on a mental health holiday for 6 months. Maybe not.

Although throughout my mental health journey up until this point, there was a possibility of being diagnosed as Bi-polar, to actually have it confirmed is devastating. Life as I know it has changed beyond recognition and the fall out will be significant. I know my illness is treatable, but to take anti-psychotic medication feels like the worst thing that could happen. Its a confirmation of being seriously mentally ill that bothers me. I know it makes sense, the diagnosis, the medication, but I don't actually want to be like this. It feels so very final.It won't go away. I wonder if people will now categorise me with the stereo typical serious mental health image - the one where I shuffle, poke my tongue out uncontrollably and scare small children by my general demeanour. I take my prescription resentfully and scurry off with my head in my boots.

The taxi driver is still in the car park and the charge is huge. I've actually been in the centre an hour and I now have to go home via the chemist. When I hand over my magic slip, the pharmacists face changes slightly and says, "Oh we don't have this in normally so I'll order it for you and get it delivered to your house tomorrow." I feel like shouting, "Yes I'm fucking mental, so fuck off!" I think I have some residual anger regards my new diagnosis.

All I want to do is go home and go to bed. For a long time. This is where my mania will stop and the period of suicidal depression will begin. I'm entering 6 weeks of living hell.

Monday, 22 March 2010

and the nightmare continues

The whole family go to my mother-in-laws for the weekend as I am unable to function. I lay about on the sofa feeling slightly spaced, but I'm grateful for the peace and quiet, and I don't have to do any lifting or carrying of children. I have both boys at home with me on a Monday, so I ask my friend and her son if they would like to help me out whilst my husband is at work. She agrees and the day starts well. The sun is out, I feel a little better and all of the boys are playing in the garden together.

As we drink coffee and chat in my dining area, we can watch the boys running about through my big patio doors. It feels warm, cosy and almost idyllic. Then a scream rips through the clear air and my son comes flying down the garden holding his arm. Even from a reasonable distance away I can see it is horribly bent. He has just become a re-break statistic. He is absolutely beside himself and wailing, and regardless of my stitches I lift him up to my chest and hold him. I am appalled and distressed, but manage to get my friend to get the phone as I ring an ambulance. They're going to want me to set up an account at the rate we're going. When they arrive, they look annoyed as I think they thought we should have driven ourselves to A+E. I explain that I've just had an operation, cannot drive and will need someone to look after my other son as I go to the hospital. They are all apologetic and confirm that yes, its really broken and we'll have to go back to hospital and go through the whole procedure again.

I begin to get paranoid in the ambulance and wonder if they think I'm abusing my child or am emotionally absent and don't look after him. The whole "Its my fault" self esteem trigger is through the roof. Its horrible to know he's going to have to have yet another operation, a full arm cast, and to top it off, he'll be in plaster for at least the first 2 weeks of school.  When I call my husband he is furious, and is even more furious that he's got to do the whole hospital thing again. I feel like giving up. There have been too many stressful events going on and to be honest, my grey matter is imploding. And I slowly have the dawning realisation that I am in mental health free fall. I'm hanging on by my finger nails. When I said to my cpn that I could make it for a few weeks before seeing my psychiatrist, I really thought I could. I'm now beginning to wonder.

Monday, 15 March 2010

Luck is not my lady in the day or night - its going to be a long one

The conference ends and I am so relieved I want to celebrate by sleeping  for a week. I actually request some annual leave on that basis, and my boss looks baffled but agrees. My low self esteem thought filtering is at an all time high, and I spend quite a bit of time re-running things over in my head. I work hard at letting it go, but I've got too tired so it seems to be off and running on its own steam. I feel rubbish and I'm hoping catching up on some sleep will help me out a bit, but my mood is definitely going downhill and although I'm trying my CBT techniques, resting and eating well, it isn't working.

We begin the week with my son going to see the hospital fracture clinic for a check up,and his arm is fixed. Its slightly bent but we are relieved that he seems ok and they take off the plaster cast.  Its only been 4 weeks but the consultant says that it is common practice. They do the regular post fracture chat, saying not to hang off his arm like a monkey, no high contact sports etc, and that he is at risk of re break as the bone is soft, but don't worry. Take it easy and all will be well.

The following week at work, if I were to rank my self on the scale of mental wellness from 1 - 10 (10 being fabulous), I'd say I was about 2. My mind is racing, racing, racing and I cannot concentrate or make decisions, and I'm so agitated I feel like I'm constantly jumping up and down on the spot. A colleague comes to my desk and asks me to do something for him in the next hour, and basically I turn round and say, "Oh just fuck off!" My fellow work bank members stare at me, and I realise that I'm at a jumping off place. This is not good. For anybody that knows me well, this is way out of character. I am generally more loving, tolerant and accepting of others, and I would never abuse you so obviously and terribly in front of others or by yourself.

I walk at a fast pace to my bosses empty office and call the mental health team. I request a quick chat with my old CPN as I need to touch base with a sensible person. As soon as she comes on the line, I "Vent my spleen" hardly drawing breath, and when I finally do stop, she tells me to slow down and sit still if I can. All is not well in the garden of sanity, and she tells me that she'll get me an appointment with my psychiatrist as soon as she can. I start crying with relief and she tells me to rest lots, and if I go completely bonkers before she gets back to me (My words, not hers of course)  to call the out of hours crisis resolution team, or, go to A+E (in the little white van, with little yellow wheels as people used to joke in the 1970's). In her words I am "Terribly jumbled."

I spend the weekend trapped in my head. The only way I can describe it, is an internal mind experience of having the whirlies. You know when you drink too much scrumpy cider and you come home only to find everything spinning around. Then when you shut your eyes its actually worse? Well, being hyper manic is like that but in your own head. You cannot hold a thought and it splinters at high speed, and when you think you've caught the thread it disappears. It's like thoughts teleporting around your brain with you running behind it.

When my lovely cpn actually calls me back she says the earliest I can be seen is in about 2 weeks time and can I hang on that long? I take a deep breath and say "ok" but again she stresses that if I am really frightened or lose it completely, that I need to access emergency care. I promise her that I won't do anything stupid and that I'll see her soon. At this point in time, although I feel very ill, I still have insight and I'm still functioning - Just.

I never work on a Monday, so on the Tuesday I go to a multi agency meeting at the ambulance service headquarters. My luck is running short and our car has broken down yet again, so I get the train and walk to HQ. Whilst I'm there I start to feel physically ill. I begin to wonder if I have some kind of nasty virus as physical illness can really effect my emotional and mental health.Maybe this is why I feel so crap. It feels like I have food poisoning as I start to feel very hot, I feel nausea and I have pains in my tummy. You know that weird griping and then the watering mouth when you think you're going to throw up? Well this is how I am, so at the end of the meeting, I politely ask if anyone would volunteer to drop me home as I feel terrible. They all remark that I look a little grey, and laugh and chortle as all the ambulance staff I am currently talking to are off duty! HA!HA! they cry!!!

I fall into my house and strip as I am burning hot and lay on my living room floor. Any mothers reading this will recognise that this is serious stuff. Mothers, unless they are knocked over by a bus, or strapped to a chair, function in all conditions. My stomach hurts so much I have to roll up in a ball and I cannot straighten my legs very well. I call my  GP surgery and plead for someone to come and see me. I have no car and cannot imagine calling a cab, waiting for a cab, etc etc. Thankfully, they agree for a GP to at least phone me so I can discuss my symptoms. I shuffle to get my pyjamas on and then lay on the sofa with the phone. My husband arrives with the kids, and amazingly, my GP. I have no idea why they actually sent her but she is an image of salvation. After a push and a prod, she confirms my fears. Its not an enormous poo that has got stuck somewhere or food poisoning. Its either an ectopic pregnancy or appendicitis. Shit. She calls for an ambulance to get me within 2 hours. I'm not at the dying stage apparently, so I can get admitted to a ward and be sorted out in real time, not another cut and shut emergency. My husband gets me a hot water bottle as I have the shivers, and we wait. By 9pm I am squealing, "Like a stuck pig" I think is the phrase, and my husband is ringing the number of the non-emergency ambulance to find out where they are. They arrive in the next half an hour, then immediatly fill me with morphine and request I take off most of my clothes as I am cooking. Morphine injections make you feel like someone is injecting concrete into the back of your head, that your eyeballs are rolling and you're falling backwards into candy floss. They pop me in a wheel chair and both they and I complain as the drive is filled with pot holes. They can't push and every time we drop down a hole I yelp. Its not going well.

When I am finally admitted to the ward I am almost beyond communication, so when the registrar comes and pulls my legs out flat and pokes me I almost punch her in the face. She kindly reminds me that she is trying to help me. I kindly remind her that I am in huge amounts of pain. We reach an impasse and decide that actually I need my appendics out. She's going to knock me out with pain relief for the night, and I'll go down to theatre first thing. Well Thank God for that.

When I come round thay have sucked out the wretched and quite frankly, useless part of my stomach, via keyhole surgery. I am done and dusted and home by tea time, although I'm not allowed to do anything for 2 weeks like lifting, driving and all of that. I have great joy in using my work blackberry to e-mail my colleagues about my adventure. They are contrite and apologetic. So they bloody should be! I hope that this medical emergency was the root of my mental ill health and wait for a recovery of both mind and body.

Monday, 8 March 2010

Let the stress take its toll and the madness begin.

My first week back from France is intense to say the least. The work created from the conference is so full on I feel like it has taken over my life. I'm getting up really early, doing extremely long days, doing work and e-mails at home, and seem to be so consumed with the preparation everything else has gone out of the window. I have tunnel vision and excess energy. On the flip side of this mental health coin, my depression is pulling me down very quickly. I am emotionally fatigued, over sensitive, tearful and short of breath most of the time. I'm having terrible nightmares and my sleep is rubbish.

The week leading up to the conference, my boss and I deliver a workshop to a select group of people ranging from regional police officers and local councillors to front line staff and senior managers. It goes well and both of us are pleased with the result. Walking back from the venue, I get a telephone call which begins with, "Try not to worry but..." and my stomach lurches and I feel sick, and start to cry when they tell me my eldest son has come off the slide at nursery and has broken his arm. Immediately I feel terrible, as normally I would have picked him up and hour ago, and the only reason I am late is because of the workshop. Its my fault. Trying not to panic and focusing on what the nursery manager is saying, I attempt to quell the panic and figure out what to do.The manager has called an ambulance and they are on their way. I am already in the City where the A+E hospital is, so staff from the nursery will come in the ambulance and a car following, and we will all meet at childrens A+E.

When they arrive the nursery staff have been crying and everyone is traumatised by what has happend. My husband also arrives and is the epitome of wrath. He wants someones head on a plate. I have to remind him that our son is the one that needs attention and going on a rampage at this point in time is not a good idea. My darling son now has a right arm that looks like a banana and he is visibly in pain and terribly upset. When I reach to take him, the nursery lady finds it hard to let him go. We all want to hold him.

We go to our little cubicle and my husband hopes its not a break, but that's just wishful thinking. All I can hear in my head is, "You should have been there, you should have picked him up earlier, if you had of done this he would be ok." I try hard not to imagine how frightened my son must have been and in how much pain. We get an x-ray and he's broken both bones in his right arm, up high on the forearm toward the elbow. It is a nasty break, and he's going to be in overnight and in surgery in the morning. I'm trying so hard not to sob the whole time and it feels uncontrollable.

On the morning of the operation a lovley lady tries to explain what is going to happen in theatre, but as the time draws near, complete panic sets in and we have to drag our son to the aneasthetic room. He is kicking and screaming, pleading for us to help him. My husband has to go through to the aneasthetic area alone as two adults aren't allowed in, and I can hear the continuous pleas from outside. Its harrowing for all of us. When it does finally go quiet my husband comes out in floods of tears.

I do a Low self esteem reaction to the situation, and tell my husband that I should give up work and never let the kids leave the house again without me. I can't get it out of my head that its my fault and it's crippling. When my son does come out from theatre, he has a lovely smile on his face and a lovley plaster cast to match. Our relief is palpable. We have to bring him back to fracture clinic on the Wednesday to see how its setting. Immediately my husband and I flinch as he has all day meetings and I have the conference. Its on days like these you realise you really can't have it all, no matter how hard you try. We decide to do a split visit. Hubby will pick up son and meet me at the clinic. We'll both stay for the appointment and I'll take our son back to pre-school.  This means leaving my own conference for 2 hours. Its not ideal but its less important than my son. My stress level is through the roof, my anxiety is ridiculous and my sleep is active nightmares all night long. I'm buring out and I appear to have lost control of my internal steering wheel. I'm begining to feel quite frightend.

Saturday, 6 March 2010

France part 2 - Adjusting to holiday living

The first 5 days are really hot and fraught with shopping trips and trying to sort the silly car out. Thankfully my husband has a french work colleague who does some phoning around for us and gets our car booked into a garage. What I often forget is that when I spend a reasonably long time with a group of people, I have to get used to being around them. Its an emotional form of exposure therapy. Family dynamics can be difficult to interpret, whether it's passive body language, or outright war. Some people just shout at each other a lot and for them that's normal. For me that would be quite scary and I'd probably want to hide. To paraphrase, what this means is that for the first 5 days I feel absolutely terrible in my mind. Thankfully, I have my mobile phone and can text people about the carnage in my head, get some perspective and survive. It's hideous when you realise that everyone else seems fine and you want to throw yourself under the nearest croissant making machine.

When the madness in my head slows down I begin to relax and get into the groove. My extended family are happy, clean, food centred and terribly indecisive. They'll laugh when reading this as their faffing drives me to distraction and  I'm always telling them to get a bloody move on before we all die of frustration or starvation! Going to the supermarket can be a trial. My mother-in-law dawdles and loves all of the food, cooking pots and produce shelves. I just want to grab it and go. I'm damn impatient really and am a shopping spoil sport.

We barbecue, splash about in the pool, bath the kids in the laundry sink and play cards at night. Granddad tries to teach the kids cricket, but my youngest keeps running off with the ball which makes it nigh on impossible. We share the preparation of meals out, with one family doing lunch, and the other doing BBQ. It all works well and washing up is done on a natural rota where noone is requested to do it, it all just happens together. I feels good.

After about 5 days, the heavens open and it rains and rains and rains! We still go out places and have fun, but its difficult when you only have a caravan to come back too. It's at this point I start to feel a little bit of cabin fever, and depression wise, I feel erratic. My mood is all over the place and I'm certain that it can only be bad news. The amount of people that said to me before I came on holiday, "You'll feel much better after a break". Those people obviously have no children and a serious mental health condition. Holidays with family for me are not a break. Going on my own to Majorca for a week on holiday would be a proper break, and no that isn't going to happen in the near future. I think my husband would divorce me if I left him on his own for a week with our two kids.

The rain abates and the last few days are sunny, peaceful and good fun. We have a "Twilight zone" moment down by the sea front the day before we come home. We meet some people who, it turns out, live in the house that my mother-in-law was born in in England. It was very queer to say the least. We wistfully pack up our gear and make it to the ferry with no breakdowns (Well, not of the car variety at least) and when we come up on deck and sight land, we all feel slightly reflective but pleased to be back.

Depression is a nasty creature as it infects what ought to be good and honest with cynicism and fear. A 2 week holiday, spent in a peacceful part of France with loving family, should be a happy and joyful time. I did have a good time, but my constant companion tries to drag it back to gloom the whole time. It fills you with guilt, as really, you have no reason to be terribly miserable. Depression is a thief. Its a distraction burglar that tears you're eye away from the sunshine and when you look back to see it, you missed it. It's a life of "if only's" and my biggest fear is soon to be realised. I'm on the greasy hill down into madness.

Wednesday, 3 March 2010

France part 1

Considering I travel badly, going on a holiday that involves extensive driving and a ferry ride fills me with a sense of  trepidation. I have no idea why I agreed to this vacation but everyone else seems ok with it. I'll just have to take motion sickness tablets and abandon parenting for a considerable amount of the journey.We are going as a large family group with 3 cars in convoy. There will be 6 adults and 3 children on a holiday for 2 weeks. We are being joined by my husbands parents, his sister and her husband and their 7 month old son. Between us we'll have two large caravans on a small site with a shop, swimming pool, children's play area and a 20 minute walk to the beach. Sounds Idyllic. As we board the ferry all I can think of is the scene in titanic where the Irish woman is sitting on her bed reading a story to her 2 very small children, knowing any second she is about to drown in freezing cold water. I am definitely nervous and try to talk myself around and not infect everyone else with my projection of a catastrophe. Its like that film "Final destination" trying to cheat death. I need to get a grip quite frankly.

Finally we all gather on deck to wave goodbye to blighty and then everyone decides it's time to eat. I try hard not to gag and think of burning vomit coming out of my throat. I'm not enjoying myself yet. Everybody keeps banging on about brioche and crepes, and all I want to do is pass out and hopefully either wake up when we're there, or, die of drowning in my sleep so I never know of the catastrophe I've been so dreading. I  look like a grey, ashen faced rabbit in head lights against everyone else's glowing excitement. Saying that though, my gorgeous sister-in-law is struggling with her baby who has decided he no longer needs sleep and is playing up a treat. First holidays with children are a traumatic affair. Its like normal parenting nightmares in a different country and climate. Its not a holiday - its hell on earth.

In the morning I wake up, obviously not dead, and gratefully make it up to the cafe to eat pastry. The kids are very excited and when we finally depart from the belly of the beast, we all trundle along nicely following our pre-prepared map to our destination. 20km from the site, our car packs up. Totally dead. Something has gone wrong with the wiring and the whole thing is locked. No power, no nothing. As we are in convoy, we deploy children to other cars and wait for international rescue. I try to reframe the situation into a positive theme, like, "Oh, 30 minutes of free time in the sunshine." Before international rescue arrive we are visited by an old French man shouting and urinating on the hard shoulder, then a English speaking French man offering help, and then the Gendarme. They try and move the car but can't, and then to my relief the tow truck turns up. They literally drag our car off the road and deliver us to a very shoddy garage with a fat lady and a smelly dog. However, things turn out well. We leave our car there, get a hire car and arrive 3 hours later than planned to our new caravan home.

The next 24 hours will be a test of my serenity and CBT techniques. I'd forgotten that change, stress and dealing with other people can send me a bit doo-lally! It isn't their fault, I'm just wired up like our car.

Monday, 1 March 2010

Feeling dodgy on the way to La-la land

Imagine you are juggling 3 balls comfortably, but then someone throws in an extra ball. It throws you off your step, but you manage to keep a hold. But then another ball gets thrown at you and you start to drop balls all over the place. This is what its like building up to a manic episode. Your tummy feels fluttery a lot of the time and you have a bubbling stream of weird excitement jogging along with you. You know its there but its like a lid is pushing down on it, and for now at least, it gently propels me along at a pace I can just about manage. I have a curious sensation of being attached by a wire to the body that is separating out in front of me. The body in front is the one that is rushy, taking at 100mph, taking on far too much work and generally being a bit loopy. The trailing body is the one that watches on in despair as it predicts the hideous crash that will inevitably happen, but feels completely powerless to intervene. The thread of connection becomes more stretched and tenuous the more I speed up.

I remember seeing my psychiatrist at the begining of May and telling him I didn't feel quite right. It was definately the odd before the storm. That little orange nylon covered chair that pushes up next to his desk is a comforting safe place. I wasn't keen on leaving after our 20 minutes, but he said, "If you have any problems before your next appointment, just telephone."  Famous last words.

So during May things start to pile up. I'm trying to organise a conference for approx. 100 people, using a whole new approach (the whole systems approach) and I keep having to have extra meetings with a woman we all fondly begin to call chlamydia because we can't pronounce her name correctly. People are going off sick too, or, being redirected to other work instead of helping me. I am under lots of scrutiny from up the 3 line whip and everything is feeling a little bit unmanageable. The stress also increases as I have 2 weeks holiday booked, which will parachute me back into the chaos 2 weeks before the conference actually happens. Oh yeah, and I'm meant to be doing a workshop for 25 people with my boss as well as attending meetings and mediating between the variety of tossers who think being a strategy manager is an easy job and involves doing nothing. I ask for extra help or for someone to keep an eye on my e-mails etc. in my absence. Every ones looks at me as though I just popped a shit biscuit in my mouth. I'm on my own.